Defining and Measuring Quality
Because of the complexity of their needs, people with serious illness are especially vulnerable to poor quality care—particularly in the context of rising pressure to control costs. This collection helps payers, policymakers, and providers understand best practices for delivering quality of care during a serious illness, and to identify certifications that demonstrate adherence to third-party quality standards. Particular attention should be paid to the National Consensus Project Clinical Practice Guidelines for Quality Palliative Care (4th edition), a foundational document that defines the components of quality care for people with serious illness, regardless of setting and applicable to clinicians in all specialties and disciplines.
What’s in the Toolkit
National Consensus Project Clinical Practice Guidelines for Quality Palliative Care
The National Consensus Project (NCP) guidelines foster consistent and high standards in the care of people with serious illness
The National Consensus Project (NCP) Clinical Practice Guidelines are the national standard for high quality palliative care. National Consensus Project for Quality Palliative Care, 2018.
Systematic review and grading of the evidence supporting each domain of the NCP Guidelines; reviews literature published between 2013 to 2017.
Other Relevant Clinical Guidelines
Best practice recommendations for disease treatment that include access to palliative care.
National accreditation standards for cancer care, requiring provision of palliative care services, navigation programs, and psychosocial distress screening.
ASCO Guideline calling for routine use of early and concurrent palliative care for advanced stage cancer patients.
ACC/AHA Guidance endorsing concurrent palliative care to improve quality of life for patients with symptomatic advanced heart failure (originally published in 2013 and updated in 2017), as well as management of adults with congenital heart disease.
The Alzheimer Association's 2018 dementia care recommendations, drawn on person-centered care principles.
Professional Certifications in Palliative Care
Specialty certification resources for clinicians from all disciplines.
PAs can demonstrate their specialty and competency through a Certificate of Added Qualifications in Palliative Medicine and Hospice Care (PMHC CAQ), administered by the NCCPA.
The Hospice and Palliative Medicine examination is administered by the American Board of Medical Specialties (ABMS) and the American Osteopathic Association (AOA).
The Hospice and Palliative Credentialing Center (HPCC) website offers information and testing dates for hospice and palliative nursing certification.
The APHSW-C certification recognizes bachelor’s and master’s level social workers with experience, specialized skills, and competency in hospice and palliative social work. The APHSW-C assures the public that certified practitioners have the knowledge and skills to provide safe, high-quality care at an advanced level. Individuals eligible for certification include experienced hospice and palliative care social workers that practice in clinical and academic settings in the United States and Canada.
Certification in hospice and palliative care is available through the National Association of Social Workers for a bachelor's or master's level social worker.
Palliative care specialty certification through the Board of Chaplaincy Certification Inc. (BCCI), an affiliate of the Association of Professional Chaplains.
The College of Pastoral Supervision and Psychotherapy offers training and accreditation for chaplains, pastoral supervisors, and pastoral psychotherapists.
Program Certifications in Palliative Care
Both hospitals and community-based providers can demonstrate adherence to national quality guidelines through program certification by accrediting organizations.
Designations connoting high-quality specialty palliative care in both inpatient and community care settings. Includes a comparison of eligibility criteria, standards, and requirements for all available program designations.
Recognizes palliative care programs in TJC-accredited hospitals that demonstrate exceptional quality.
Recognizes hospital palliative care programs in that demonstrate exceptional quality. DNV GL base accreditation is not required.
Recognizes palliative care programs delivered by hospice or home health agencies that demonstrate exceptional quality.
The Accreditation Commission for Health Care (ACHC) recognizes community-based palliative care programs that demonstrate exceptional quality; optional distinction in telehealth available. ACHC also offers palliative care distinction for accredited home health, hospice, and private duty agencies.
The Accreditation Commission for Health Care (ACHC) recognizes home health and hospice programs that have demonstrated excellence in delivering age-friendly care to elderly patients.
The Accreditation Commission for Health Care (ACHC) is committed to providing healthcare organizations with comprehensive standards that facilitate the highest level of performance. In 2024, an additional distinction for community-based palliative care programs, incorporating care delivery via telehealth was added. This document includes the Preliminary Evidence Report Checklist and ACHC Palliative Care Accreditation Standards.
Recognizes home-based programs that demonstrate exceptional quality. CHAP base accreditation not required, and home-based medical groups are eligible. Community Health Accreditation Partner, 2019.
National accreditation standards for cancer care, requiring provision of palliative care services, navigation programs, and psychosocial distress screening.
Three levels of certification available, managed by the American College of Emergency Physicians; requires clinical protocol to identify ED patients who might benefit from palliative care and facilitate access.
Quality Standards and Incentive Programs
Examples and recommended standards to incentivize—or require—access to palliative care and adherence to quality guidelines.
A blog describing two straight-forward and effective programs, one at Anthem Inc and one Highmark Blue Cross Blue Shield, incentivizing access to palliative care in network hospitals.
Structures and processes that all hospitals and skilled nursing facilities need to assure access to high-quality care for people with serious illness.
A one-page document that translates the 4Ms of Age-Friendly Health Systems into action.
Recommended capabilities and competencies for payers and policymakers to contract with quality programs.
Quality Improvement
Information about national palliative care registries that support the field of palliative care; benchmark and compare your program to peer programs as well as collect actionable metrics for quality improvement.
PCQC is a membership organization that operates a national unified palliative care registry, which captures both program and patient-level data. Membership allows palliative care teams to track their performance over time, benchmark against their peers, and participate in quality improvement offerings.
Measures that can be used by payers and policymakers to ensure quality care for people living with serious illness.
Guidance on how to use the new measures, heard and understood and attention to pain, from the American Association of Hospice and Palliative Medicine.
Use this toolkit to select program measures that demonstrate value to stakeholders and support quality care delivery. Overcome common measurement obstacles and synthesize program data.
Consolidation of selected areas of focus and defined strategies to enhance accountability for access to palliative care and enhance the quality of those services. Center to Advance Palliative Care and National Quality Forum, 2020.
Insights, recommended strategies, approaches, and tools, and a snapshot of the current quality measurement landscape for serious illness. National Quality Forum (NQF).
A comprehensive profile of hospital palliative care programs participating in the National Palliative Care Registry™. The goal of this report is to provide actionable information to promote standardization and improve the quality of hospital palliative care.
Faculty
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Diane E. Meier, MD, FACP, FAAHPM
Founder, Director Emerita and Strategic Medical Advisor, Center to Advance Palliative Care
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Allison Silvers, MBA
Chief Health Care Transformation Officer
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Maggie Rogers, MPH
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Brynn Bowman, MPA
Chief Executive Officer, Center to Advance Palliative Care
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Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN
Consultant
Center to Advance Palliative Care