National Palliative Care Registry™

In fall 2020, a national registry for the collection of palliative care data launched. The National Palliative Care Registry™, the Palliative Care Quality Network (PCQN), and the Global Palliative Care Quality Alliance (GPCQA) united into one national system called the Palliative Care Quality Collaborative (PCQC).

PCQC captures both program and patient-level quality data. It incorporates the best practices of each system, has improved comparison reports, aligns with national standards, and explores EHR integration. Program-level data remains free for participating programs.

Visit the PCQC website for more information.

The National Palliative Care Registry, a joint project of the Center to Advance Palliative Care (CAPC) and the National Palliative Care Research Center (NPCRC), was active from 2008-2020, and its goal was to build a profile of palliative care teams, operations, and service delivery. During that time, more than 1,000 palliative care programs received at least one comparative performance report.