This collection of tools is a one-stop shop for interdisciplinary teams caring for patients living with a serious illness. The tools and resources on this page can be used to screen for, assess, document, and manage the palliative needs of patients and their caregivers. Teams will also find guidance on how to support team health, promote role clarity, and improve practice efficiency.

What’s in the Toolkit

A collection of tools that clinicians can use to assess and track functional status of patients with serious illness.

Palliative Performance Scale

Assesses the patient's functional abilities including ambulation, activity level, self-care ability, intake and consciousness.

ECOG Performance Status

Assess disease progression, impact on activities of daily living, and appropriate treatment and prognosis.

Validated symptom assessment tools clinicians can use to assess and track symptom burden in serious illness.

Revised Edmonton Symptom Assessment System (ESAS-r)

Assesses for nine symptoms experienced by patients with serious illness and quantifies their severity. Alberta Health Services.

Condensed Memorial Symptom Assessment Scale (CMSAS)

Measures the frequency, severity, and distress associated with 32 symptoms.

Pain Assessment Questions
MEMBERS ONLY locked

Recommended assessment questions to typify pain and inform pain management for patients with serious illness.

Pain Assessment and Documentation Tool (PADT)

Validated instrument to assess pain intensity and impact on function over time.

Pain Assessment in Advanced Dementia (PAINAD)

Tool to assess pain in cognitively impaired patients.

Stepwise Protocols for Crisis Symptom Management
MEMBERS ONLY locked

This practical guidance can be shared with all clinicians to ensure patient symptoms are managed.

A collection of tools to assist clinicians in the assessment of the psychological and social impact of serious illness on their patients, and their caregivers.

NCCN Distress Thermometer

Assessment tool for symptom burden and impact on quality of life. National Comprehensive Cancer Network (NCCN), 2016.

PHQ-4 Validated Screening Tool for Anxiety and Depression

Brief (4-question) screening tool for anxiety and depression.

PHQ-9: Validated Screening Tool for Depression

Used to screen, diagnose and measure the severity of depression.

GAD-7 Anxiety Scale

Measure for assessing generalized anxiety disorder.

Spiritual Screening Tool

Assessment for suffering, distress, disconnection, or spiritual pain. Supportive Care Coalition.

Zarit Burden Interview (ZBI-12)

Self-reported caregiver assessment.

CMS Accountable Health Communities Screening for Health-Related Social Needs

Identifies unmet need in housing, food, transportation, utilities, and safety. Developed by CMS for the Accountable Health Communities model, and recommended for Medicare and Medicaid beneficiaries.

A collection of tools to aid clinicians in the screening, assessment, and staging of patients with dementia.

Pain Assessment in Advanced Dementia (PAINAD)

Tool to assess pain in cognitively impaired patients.

AD8 Dementia Screening

Screens for early dementia, which is often missed by common assessment tools such as the Mini-Mental Status Examination.

FAST Scale

For staging and prognosis after a dementia diagnosis.

Dementia Care Resources for Caregivers

Print or email this handout of caregiver resources for education and support.

Tips for Communicating with People Living with Dementia
MEMBERS ONLY locked

Guidelines for clinicians and caregivers.

A collection of tools to assist clinicians with the safe and effective use of opioids to relieve suffering for patients with serious illness.

Pain Assessment Questions
MEMBERS ONLY locked

Recommended assessment questions to typify pain and inform pain management for patients with serious illness.

Pain Assessment and Documentation Tool (PADT)

Validated instrument to assess pain intensity and impact on function over time.

Equianalgesic Conversion Table

Depicts the relative potencies of commonly prescribed opioids compared to oral morphine.

Prescribing Opioids: A Pocket Reference

Opioid pocket reference for providers including safe starting doses, equianalgesic chart, and standard dosing strengths.

Starting Doses in the Opioid-Naïve Patient
MEMBERS ONLY locked

A pocket reference of safe starting doses for the opioid-naïve patient.

Analgesics Fact Sheet

When to use - and when to avoid - 6 classes of analgesics including acetaminophen, NSAIDs, opioids, antiepileptics, antidepressants, and corticosteroids.

Opioid Treatment Agreement
MEMBERS ONLY locked

Sample opioid treatment agreement.

HHS Guide for Clinicians on the Appropriate Dosage Reduction or Discontinuation of Long-Term Opioid Analgesics

U.S. Department of Health and Human Services guidance for clinicians on patient-centered reduction or discontinuation of long-term opioid therapy.

Treating Constipation at Home

Sample protocol for managing constipation. Organizations can create similar protocols in collaboration with referring clinicians and pharmacists.

A collection of tools and technical assistance to help clinicians improve communication with patients and families living with serious illness.

Words Matter: Improving Word Choice When Talking to Patients and Families

In this on-demand webinar, speakers discuss the influence of word choice on patients, families, staff, and outcomes. They also explain how common words and phrases in health care may have unintended consequences and suggest how to improve word choice.

Why Patient Experience Matters and How to Achieve It

In this on-demand webinar, Corey L. Kennard, MACM, CPXP will help attendees understand and connect with the importance of a positive patient experience.

Advance Care Planning Conversations: Key Takeaways
MEMBERS ONLY locked

Stepwise approach to discussing advance care planning with patients or surrogates. Center to Advance Palliative Care and VitalTalk.

Discussing Serious News Best Practices
MEMBERS ONLY locked

A stepwise approach for all members of the health care team to guide conversations with patients about serious news.

Discussing Prognosis Best Practices
MEMBERS ONLY locked

A stepwise approach for all members of the health care team for discussing prognosis with patients and families.

Clarifying Patient Goals of Care Best Practices
MEMBERS ONLY locked

A stepwise approach for all members of the health care team for clarifying patient goals of care.

Leading a Patient and Caregiver Meeting Best Practices
MEMBERS ONLY locked

A stepwise approach for all members of the health care team for leading meetings with patients and caregivers.

Care Planning Best Practices
MEMBERS ONLY locked

A stepwise approach for all members of the health care team to guide care planning with patients and caregivers.

Discussing Your Patient's Dementia Diagnosis Key Takeaways
MEMBERS ONLY locked

Stepwise approach for discussing a dementia diagnosis with patients and caregivers.

Course 3 Key Takeaways: Communicating What to Expect Throughout the Trajectory of Dementia
MEMBERS ONLY locked

Key Takeaways for Course 3 of the Best Practices in Dementia Care and Caregiver Support Unit.

A Guide for Conducting an ICU Family Meeting When the Patient Is Unable to Participate
MEMBERS ONLY locked

Communication framework for discussing goals of care with families of patients in the ICU.

Template notes for documenting patient care.

Pain Assessment and Documentation Tool (PADT)

Validated instrument to assess pain intensity and impact on function over time.

Palliative Care Progress Note
MEMBERS ONLY locked

An effective progress note based on the core domains of palliative care is one of your best marketing tools. There's no better way to effectively show referral sources what palliative care can do. Sample document shared by Carle Foundation Hospital, 2017.

Inpatient Initial Social Work Note
MEMBERS ONLY locked

Shared by Hospital of University of Pennsylvania.

Social Work Consultation Note
MEMBERS ONLY locked

Shared by Central Baptist Hospital.

Sample (C)CCM Consent Agreement
MEMBERS ONLY locked

Sample consent agreement required for CCM and CCCM billing. ResolutionCare, 2018.

Informed Consent
MEMBERS ONLY locked

Shared by Interim HealthCare/CarePoint.

Palliative Care Consent Form Example
MEMBERS ONLY locked

Form utilized by our providers during the first visit to inform and document patient and family HIPPA and billing responsibilities. Palliative Care Associates, a program of Hospice and Palliative Care of Greensboro, August 2018.

Sample Treatment Agreement/Informed Consent Form
MEMBERS ONLY locked

Documentation of patient and clinician goals and expectations for safe and effective opioid treatment.

Rounding tool, triage system, and team meeting guide to support an efficient, high-functioning team.

Daily Team Meetings: Triage System

Guidelines for effective team meeting management.

Quick Tips #5: Running Effective Interdisciplinary Team Patient Care Meetings
MEMBERS ONLY locked

Best practices in efficient, effective IDT meetings.

Billing Outpatient Tip Sheet
MEMBERS ONLY locked

Quick reference to help clinicians with clinic based outpatient billing and coding.

Billing Home Tip Sheet
MEMBERS ONLY locked

Quick reference to help clinicians with home based billing and coding.

Northwell Home Care Network Geriatrics and Palliative Team Feedback Survey

Sample geriatrics and palliative team survey to assess patient satisfaction.

Four Seasons Compassion for Life Palliative Care Patient Satisfaction Survey

Sample survey to assess palliative care patient satisfaction.

Bluegrass Palliative Care Experience of Care Survey

Sample palliative care patient experience survey.

Tools to design and implement a training initiative for care teams from all specialties, to improve quality of life for patients and families living with serious illness. Includes 27 resources.
Hire and onboard your staff, manage program operations, and ensure a healthy high-functioning team using this toolkit. Includes 68 resources.
Toolkit for finding the right patients at the right time to address gaps in care. Includes 53 resources.

See all 49 Toolkits

Get the latest updates in your inbox!