Patients who are neither hospitalized nor on hospice care need access to palliative care in a community clinic or office setting, such as a cancer center or dialysis unit. Such services may be delivered by physician groups or hospice- or home-health-based palliative care teams, or as extensions of an inpatient palliative care team and program.

Some office/clinic palliative care programs are embedded within another specialty clinic (for example, an oncology clinic), while others may share space within an existing clinic but operate independently; still others are geographically freestanding. Each model has operational and financial tradeoffs—learn more in the “Designing the Service” section of this toolkit.

What’s in the Toolkit

Engage partners—patients and families, organizational leadership, referrers, and financial partners—to understand their priorities and guide program design.

The Case for Community-Based Palliative Care

The majority of people with serious illness are neither dying nor hospitalized. So, palliative care needs to be available in all settings outside hospitals—in medical offices and clinics, in post-acute and long-term care facilities, and in patient homes. This publication includes key data on the value of community palliative care, program profiles, and a case example to use with leadership.

Introduction to Palliative Care in the Community

Defining community-based palliative care: which patients need it, how it is delivered, and how it differs from inpatient palliative care.

Concepts of Community-Based Palliative Care Program Design 101, Section 3 Worksheet: Conduct a Needs Assessment Part 1 – Gather and Analyze Quantitative Data
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Reflect on the importance of conducting a needs assessment as a first step in planning a program. Assess the types of information you need to collect as part of the assessment, and describe how assessment findings influence your program’s design.

Concepts of Community-Based Palliative Care Program Design 101, Section 4 Worksheet: Conduct a Needs Assessment Part 2 – Identify your Stakeholders and Their Priorities
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Reflect on and record who your program’s stakeholders are and how their priorities influence your program’s design.

Community Toolbox: Conducting Focus Groups

Comprehensive instructions and tools for conducting focus groups during a needs assessment. Published by Community Tool Box.

Planning for Community-Based Care: Getting Started

In this Virtual Office Hour, ask questions of expert faculty about launching a new community-based program, designing your service package and staffing, and navigating the challenges of a new program.

Clinic-based palliative care services are delivered using a number of different models depending upon patient need, organizational priorities, and referrer relationships.

Innovative Initiatives in Community-Based Palliative Care

In this on-demand webinar, CAPC Consultant Connie Dahlin highlights three programs that have created community-based initiatives that promote access to quality, interprofessional palliative care in the community that is both replicable and sustainable.

National Consensus Project for Quality Palliative Care, 4th edition

The National Consensus Project (NCP) Clinical Practice Guidelines are the national standard for high quality palliative care. National Consensus Project for Quality Palliative Care, 2018.

Concepts of Community-Based Palliative Care Program Design 101, Section 3 Worksheet: Conduct a Needs Assessment Part 1 – Gather and Analyze Quantitative Data
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Reflect on the importance of conducting a needs assessment as a first step in planning a program. Assess the types of information you need to collect as part of the assessment, and describe how assessment findings influence your program’s design.

Concepts of Community-Based Palliative Care Program Design 101, Section 4 Worksheet: Conduct a Needs Assessment Part 2 – Identify your Stakeholders and Their Priorities
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Reflect on and record who your program’s stakeholders are and how their priorities influence your program’s design.

Population Stratification Considerations
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Guidance on dosing interventions allocating visit frequency based on patient risk.

Office-Based Palliative Care Clinical Encounter Planning Checklist
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Steps to ensure high-quality, well-coordinated clinical care for the office-based interdisciplinary team.

Office-Based Palliative Care Administrative Planning Checklist
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Steps to ensure high-functioning administrative and operational practices for the office-based program.

Building and Supporting Effective Palliative Care Teams

Hire and onboard your staff, manage program operations, and ensure a healthy high-functioning team using this toolkit.

Telehealth Start-Up Guide

Key components of telehealth service delivery, especially in a home-based palliative care program.

CCHP Unveils Telehealth Reimbursement Guide for Providers

Information about The Center for Connected Health Policy's new provider resource on Medicare and Medicaid reimbursement for telehealth and mHealth.

Specialty Clinic/Primary Care Service Agreement
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Sample service agreement and scope of practice for embedded palliative care services. Shared by the John D. Dingell VA Medical Center.

Use these tools to design or update a sustainable business plan and budget for your clinic program.

Concepts of Community-Based Palliative Care Program Design 101, Section 14 Worksheet: Create a Business Plan
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Reflect on factors that influence your business planning process, and identify the tasks needed to complete your business plan.

Concepts of Community-Based Palliative Care Program Design 101, Section 12 Worksheet: Determine Program Staffing
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Reflect on skills to consider when hiring and training staff for your community-based palliative care program. Draft a staffing plan that is designed to meet the needs of your program’s patients.

Concepts of Community-Based Palliative Care Program Design 101, Section 13 Worksheet: Build the Budget
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Reflect on potential organizational partners that can assist with developing your program’s budget. Record your business planning assumptions about the program’s patient population, service model, and staffing.

Staffing, Budgeting, and Business Planning

Tools for translating operational and service decisions into a realistic budget and business plan.

Optimize your program’s billing practices to support financial viability.

Billing and Coding

Toolkit with billing and coding best practices for palliative care services delivered in the hospital or the community.

Billing for Community-Based Palliative Care

In this Virtual Office Hour, ask questions about billing for services provided in the home, office, or long-term care setting.

Collect data on outcomes that matter to your program’s financial and clinical partners—including patients—and that facilitate continuous quality improvement. Use these tools to identify measures aligned with the concerns of your collaborators, collect the data, and apply data analytics to demonstrate program value.

Measurement Best Practices

Use this toolkit to select program measures that demonstrate value and support quality care delivery. Overcome common measurement obstacles and synthesize program data.

Sample position descriptions for the clinic-based team.

Building and Supporting Effective Palliative Care Teams

Hire and onboard your staff, manage program operations, and ensure a healthy high-functioning team using this toolkit.

A self-directed learning activity providing foundational concepts for building, growing, or redesigning palliative care programs in home, office, or long-term care settings. Includes 24 resources.
Strategic planning for program growth, including making the case, demonstrating value, and strengthening relationships with partners. Includes 22 resources.
Tools for translating operational and service decisions into a realistic budget and business plan. Includes 10 resources.

See all 49 Toolkits

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