This curated collection of literature, including peer-reviewed journal articles and other thought pieces, helps palliative care leaders and champions make the case for additional support for people living with serious illness. In addition, health care leaders can use this compliation to develop effective strategies and address common misperceptions.

What’s in the Toolkit

Selection of journal articles highlighting the quality of life impact of palliative care services.

Symptom Monitoring with Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial

A randomized control trial which showed that remote patient monitoring of symptoms reduced emergency department and hospital use, while improving adherence to treatment (Basch et al.).

Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis

Meta-analysis of a broad range of possible outcomes from palliative care services (Kavalieratos et al.).

Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer

A randomized control trial which showed that early palliative care not only improved quality of life but resulted in longer survival (Temel et al.).

What's wrong with Advanced Care Planning?

A consolidation of the evidence of the impact of advanced care planning and thoughts on resource use (Morrison, Meier, Arnold).

The Impact of Specialty Palliative Care in Pediatric Oncology: A Systematic Review

A review of 32 articles demonstrating palliative care led to improved patient and utilization outcomes for pediatric cancer patients (Kaye et al).

A selection of journal articles highlighting reductions in avoidable utilization.

The Impact of a Home-Based Palliative Care Program in an Accountable Care Organization

A retrospective analysis showing significant reductions in acute care utilization for decedents with home-based palliative care compared to usual care (Lustbader et al.).

Economics of Palliative Care for Hospitalized Adults with Serious Illness: A Meta-analysis

A meta-analysis of hospital cost savings associated with palliative care services, highlighting differences in impact across patient populations (May et al.).

Association of Receipt of Palliative Care Interventions with Health Care Use, Quality of Life, and Symptom Burden Among Adults with Chronic Noncancer Illness: A Systematic Review and Meta-analysis

A systematic review and meta-analysis that found a significant association between palliative care and lower acute health care use and symptom burden in patients with non-cancer diagnoses (Quinn et al.).

Aetna's Compassionate Care Program: Sustained Value for Our Members with Advanced Illness.

An analysis of a health plan-led program of communication interventions and connection to palliative care and hospice, resulting in a significant decline in acute care utilization (Baquet-Simpson et al.).

Making the Case for Palliative Care at the System Level: Outcomes Data.

An analysis across a 7-hospital system shows cost avoidance at 1.5 times palliative care spending and other benefits (Bharadwaj et al.).

The Business Case for Palliative Care: Translating Research into Program Development in the U.S.

A summary of 10 principles and relevant data to inform the business case for palliative care services across settings (Cassel et al.).

Articles that calculate the prevalence of certified palliative care specialists and specialty programs.

State of palliative care services at US cancer centers: An updated national survey

A study that used a survey to look at the prevalence of palliative care in cancer centers, with a significant increase in National Cancer Institute (NCI)-designated cancer centers (Hui et al.).

Pediatric Palliative Care Programs in US Hospitals

An analysis of data from the National Palliative Care Registry™ on the operations of pediatric palliative care programs in the US (Rogers et al.).

Policy Changes Key to Promoting Sustainability and Growth of the Specialty Palliative Care Workforce

An analysis and commentary on the future size of the US palliative care workforce and recommended policy changes to spur growth (Kamal et al.).

Disparities in the Geographic Distribution of Palliative Care Specialists in 2022

A study reveals that access to board-certified Hospice and Palliative Care physicians and nurse practitioners varies widely, depending on geographic location (Frydman et al.).

Hospital Characteristics Associated with Palliative Care Program Prevalence

An analysis of reported hospital palliative care availability, highlighting differences by hospital characteristics such as size and tax status (Rogers et al.).

Articles that look at the serious illness in relation to specific patient populations.

The Experience of Black Patients with Serious Illness in the United States: A Scoping Review

A summary of the published literature on racial disparities in care during serious illness for Black people shows that few studies research the reasons for these disparities (Heitner et al.).

How Medicare Advantage Could Address Pain Inequities for Black Patients Living with Serious Illness

A summary of racial pain assessment and management disparities, and the opportunities for Medicare Advantage plans to mitigate them, even in the face of state opioid restrictions (Silvers et al.).

Project Respect: Experiences of Seriously Ill LGBTQ+ Patients and Partners with their Health Care Providers

Survey findings highlighting disrespectful and inappropriate clinician behavior when caring for LGBTQ+ patients with serious illness (Stein et al.).

Bringing Palliative Care to Underserved Rural Communities

An overview of difficulties encountered by patients with serious illness in rural communities and the palliative care teams trying to help (Huff C).

Evolution of Palliative Care in the Department of Veterans Affairs: Lessons from an Integrated Health Care Model

An overview of how palliative care has been incorporated into care plans and systems to support veterans with serious illness (Sullivan et al.).

Articles describing 'what goes wrong' for patients living with serious illness in the current health care system.

Characterizing Potentially Preventable Cancer- and Chronic Disease-Related Emergency Department Use in the Year After Treatment Initiation: A Regional Study

An analysis of emergency department visits for patients with cancer or multiple chronic conditions, highlighting the prevalence and cost impact of specific symptoms (Panattoni et al.).

Patients' Expectations about Effects of Chemotherapy for Advanced Cancer

An article describes that the majority of patients receiving chemotherapy for incurable cancers may not understand that chemotherapy is unlikely to be curative, which could compromise their ability to make informed treatment decisions that are consonant with their preferences (Weeks et al.).

‘I Don’t Want Jenny To Think I’m Abandoning Her’: Views On Overtreatment

A narrative article providing perspective on why some clinicians may recommend treatments (DE Meier).

Articles and information that aim to improve quality of life for caregivers of people with serious illness.

Caregiving in the United States 2020

A national summary of caregiver characteristics and consequences of caregiving; updated every 5 years (AARP and NAC).

Top Ten Tips Palliative Care Clinicians Should Know About Caring for Family Caregivers

Guidance on how palliative care teams can partner with caregivers and provide psychosocial support (Applebaum et al.).

Effects of Early Integrated Palliative Care on Caregivers of Patients with Lung and Gastrointestinal Cancer: A Randomized Clinical Trial

A randomized controlled trial showing the impact of palliative care services on informal caregivers, and the sustainability of impact (El-Jawahri et al.).

Articles that describe limitations and false assumptions in the palliative care field.

Predictive modeling of U.S. health care spending in late life

An analysis highlighting that death and spending in the last year of life remains unpredictable despite many algorithms (Einav et al.).

ACO Serious Illness Care: Survey and Case Studies Depict Current Challenges and Future Opportunities

An article which shows that despite clearly-aligned incentives, few Medicare Shared Savings Programs employ palliative care and other strategies focused on patients with serious illness. Interviews reveal the likely barriers. (Bleser et al.).

What Does "Palliative Care" Represent in Research Using Secondary Data?

An article summarizing the limitations and interpretation cautions of available data on the use of specialty palliative care (JB Cassel).

Public Perceptions of Advance Care Planning, Palliative Care, and Hospice: A Scoping Review

A summary of twelve articles concerning public perceptions of palliative care, hospice, and advance care planning, which are three distinct challenges that require precise public messaging (Grant, Back, Dettmar).

Tools to make the case for palliative care resources and financial partnerships, including the palliative care evidence base and downloadable tools for presenting the case. Includes 27 resources.
Strategic planning for program growth, including making the case, demonstrating value, and strengthening relationships with partners. Includes 22 resources.
Resources for palliative care programs working with payers and other financial collaborators, including contracting resources. Includes 14 resources.

See all 49 Toolkits

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