What You’ll Learn

Learn how to assess caregiver burden and connect caregivers with needed support systems.

Learning outcomes for this course include:

  1. Describe the population of caregivers of people living with dementia, their many responsibilities, and the impact of caregiving on caregivers.
  2. Identify tools that professionals use to assess caregiver well-being.
  3. Identify caregiving support sources, such as respite care, support groups, caregiver education, and safe return programs.

What You’ll Earn

After completing the course, you’ll earn a Verification of Attendance certificate.

Only CAPC members who are logged in can earn the following free Continuing Education Credits:

  • 0.75 AMA PRA Category 1 Credit(s)™
  • Case Management: 0.75 CE
  • Nursing: 0.75 CNE
  • Social Work: 1.00 CE (NYSED)

Social work credits are approved by the New York State Education Department. Social workers licensed outside of New York should contact their regulatory board to determine course approval for continuing education credits.

This course is open-to-all at no cost.

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Tools & Resources

Course 5 Key Takeaways: Caring for Caregivers of People Living With Dementia
MEMBERS ONLY locked

Key Takeaways for Course 5 of the Best Practices in Dementia Care and Caregiver Support Unit.

Dementia Care Resources for Caregivers

Print or email this handout of caregiver resources for education and support.

CaringKind: Finding Comfort Flyer for Caregivers

CaringKind's flyer informing of their new guide: Finding Comfort: LIving with Advanced Dementia in Residential Care

Caring for the Caregiver

Validated tools for assessing caregiver health and well-being.

Referral to Community Resources

Community-based resource locators and support services.

Dementia Care Resources in Our Community

Fill out this worksheet with contact information for community-based services in your area, and supply to clinical staff or patients and families.

Best Practice Caregiving: Online Resource of Evidence-Based Dementia Caregiving Programs

Online Resource of Evidence-Based Dementia Caregiving Programs. Partnership between the Benjamin Rose Institute on Aging and the Family Caregiver Alliance. Presentation to the Dementia Care Alliance, June 2, 2021.

Course References: Caring for Caregivers of People Living With Dementia

Course citations. Center to Advance Palliative Care, 2024.

Best Practice Caregiving

Single source of detailed information to learn about and compare more than 40 evidence-based programs to support caregivers of people with dementia. For use by healthcare and community service organizations, providers, funders and policy makers.

Family Caregiver Alliance

Resource locator, education, and support for caregivers, including disease-specific information.

Home Health Compare

Medicare locator of home health agencies.

Cognitive Impairment Care Planning

Guidance from the Alzheimer's Association on utilizing CPT code 99483.

Alzheimer's Association Downloadable Resources for Patients and Caregivers

PDF resources can be printed or emailed. Some resources also available in Spanish.

CaringKind's Caregiver Storyteller Podcast

A storytelling podcast about Alzheimer's and dementia caregiving.

A Guide to Alzheimer’s Caregiving

Shared by Caring.com

Dementia Caregiving

Shared by Caring.com

The Impact of Music and Memory on Resident Level Outcomes in California Nursing Homes

A journal article about a study of the effects of a nonpharmacologic intervention, Music and Memory (M&M), on residents with dementia and/or behavioral problems living in nursing homes.

Special Report: Mapping a Better Future for Dementia Care Navigation

From the Alzheimer's Association.

Dementia Care Best Practices

Training clinicians to support people with dementia and their caregivers, and guidance for quality improvement initiatives.

Physicians

The Icahn School of Medicine at Mount Sinai is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

Icahn School of Medicine at Mount Sinai designates this enduring material for a maximum of 0.75 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

CME Released: 7/15/2024; Valid for credit through 2/15/2026

Estimated Time of Completion for CME: 45 minutes

ABIM MOC Recognition Statement

Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn 0.75 MOC credit in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. Participants will earn MOC credits equivalent to the amount of CME credits claimed for this activity. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit.

Physician Assistants

The American Academy of Physician Assistants (AAPA) accepts credit from organizations accredited by the ACCME. Icahn School of Medicine at Mount Sinai designates this enduring material with 0.75 AMA PRA Category 1 Credit™ as specified, which can be applied to the continuing education of Physician Assistants. Physician Assistants should claim only the credit commensurate with the extent of their participation in the activity.

Nurses (Registered Nurses, Advanced Practice Registered Nurses, Licensed Nurses)

This nursing continuing professional development activity was approved by Connecticut Nurses’ Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

CNE Released: 7/15/2024; Valid for credit through 7/15/2026.

Estimated Time of Completion / CNE Contact Hours: 45 minutes / Contact Hours 0.75

Social Workers

Center to Advance Palliative Care SW CPE #0257 is recognized by the New York State Education Department's State Board for Social Work as an approved provider of continuing education for licensed social workers effective 7/31/2024 - 7/31/2027. This program has been approved for 1.0 continuing education contact hours.

Members who complete courses for social work contact hours will receive a certificate from NYSED that may be submitted to their licensing institution for continuing education credit consideration. Social workers licensed outside of NY should contact their regulatory board to determine course approval for continuing education credits for courses without national social work accreditation

Certified Case Managers

This program is approved by The Commission for Case Manager Certification (Approval # 240002073) to provide 0.75 continuing education credit(s) to CCM® board certified case managers, effective 7/15/2024 - 7/15/2025.

Verification of Attendance (VOA)

All users that are not eligible for continuing education will receive a Verification of Attendance certificate upon completion of the course.

Faculty Disclosure Policy

It is the policy of Icahn School of Medicine at Mount Sinai (ISMMS) to ensure objectivity, balance, independence, transparency, and scientific rigor in all CME-accredited educational activities. All faculty participating in the planning or implementation of an activity accredited by ISMMS are expected to disclose all of their financial relationships with ineligible companies existing within the prior 24 months. All relevant financial relationships have been mitigated and disclosed to learners before the activity takes place. Presenters must also make a meaningful disclosure to the audience of their discussion of unlabeled or unapproved drugs or devices. This information will be available as part of the course material.

Course Media Instructions

Software Requirements: CAPC’s online curriculum, tools and technical assistance are designed to be fully compatible through multiple platforms: computer, smartphone (iOS or Android) or tablet running the following web browsers: Google Chrome, Mozilla Firefox, Safari, and Microsoft Edge.

Content: Each course is comprised of interactive learning components (articles, tools, or supporting materials), video and audio. The learner will be expected to complete various interactive processes such as matching, simulated clinical decision-making, fill in the blanks, and highlighting content.

To successfully earn credit, participants must complete the activity online, receive a minimum score of 80% on the post-test, and complete the course evaluation. A printable certificate of completion or a continuing award document specific to the discipline will be awarded.

Target Audience: Each program is developed for chaplains/spiritual counselors, nurses, physicians, physician assistants, social workers, case managers, palliative care program leaders, and healthcare leaders (hospital, health system and community care).

Activity Description/Statement of Needs: CAPC’s online curriculum provides training in two critical areas. Technical assistance courses are designed to help palliative care program leaders address key challenges such as implementing palliative care in community health care settings. Clinical coursework provides fundamental training in pain and symptom management, communication, and other key skills needed to work with patients with serious illness.

Disclaimers: The opinions expressed in the courses are those of the authors and do not necessarily represent the views of the sponsor, the educational partner, or the supporter. Please review complete prescribing information of specific drugs or combination of drugs, including indications, contraindications, warnings, and adverse effects before administering pharmacologic therapy to patients.

Activities do not contain information on commercial products/devices that are unlabeled for use or investigational uses of products not yet approved.

Copyright Information: All rights reserved by the Center to Advance Palliative Care (CAPC). No materials may be used or reproduced in any manner whatsoever without written permission except in the case of brief quotations embodied in articles or reviews.

Privacy Information: To read CAPC’s privacy policy, click here.

Dave Carper, MDiv, BCC. Counseling Resource Officer, Bluegrass Care Navigators

Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN. Consultant, Center to Advance Palliative Care

Maribeth Gallagher, DNP, PMHNP-BC, FAAN. Dementia Program Director, Hospice of the Valley

Macie P. Smith, Ed.D, LBSW, SW-G. Diversified Training Consultants Group

Eric Widera, MD, Professor of Medicine, University of California San Francisco

Margaret Colbert, LMSW, Inpatient Social Worker, Mount Sinai West

Kesha Graham, LISW-CP, ACM-SW. Palliative Care Clinical Social Worker, Medical University of South Carolina

Sherika Newman, DO. Founding CEO, Doctor in the Family, LLC*

Caroline Taverna, LMSW, Palliative Care Social Work Fellow, Mount Sinai Beth Israel

*indicates ABIM Peer Reviewer

Contact information: For answers to frequently asked questions about CAPC courses, read the Online Course FAQ. For technical questions about course activity, email [email protected]. For questions about continuing education credits, contact 201-957-0077.

Provided by the Icahn School of Medicine at Mount Sinai.

Relieving Distress in People Living With Dementia and Their Caregivers

Course 1 of 8

Gain an overview of the experience of living with dementia and learn how to relieve distress for patients with dementia, and their caregivers.

Discussing a Diagnosis of Dementia With Your Patient

Course 2 of 8

Learn how to discuss a dementia diagnosis with patients and caregivers in a way that is sensitive, clear, and supportive.

Communicating What to Expect Throughout the Trajectory of Dementia

Course 3 of 8

Learn techniques for supportive communication with people living with dementia, and their caregivers, to help them prepare for the challenges they may face as dementia progresses.

View all courses in the unit

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